Wild About Britain - Conversation Between Kayleigh and cherrybee

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Conversation Between Kayleigh and cherrybee

Conversation Between Kayleigh and cherrybee

Showing Visitor Messages 1 to 9 of 9

26-08-2009 04:01 PM - permalink
Kayleigh

Thanks for the update Charmain, every moment with her is a precious one..
Dave Benson Phillips sounds a top bloke.
I'm glad she is happy and enjoying life she is a credit to you all with her strength and determination..

Elaine
26-08-2009 02:33 PM - permalink
cherrybee

Clinically she shouldn't be as good.Doctors say she is amazing.She has a lot of meds to keep her comfrtable and my daughters been told to increase where she thinks is necessary.He said just to go by Alycia not the clinical diagnosis as Alycia is fighting all the way.There is no cure as her kidneys are failing which affects her heart.She is in her last stage of her illness which basically means all they can do is keep her comfy and happy.They cannot give a time limit as Alycia always exceeds it anyway.I have just waved her off as she is going to see dave benson phillips (fun song factory).He knows she is coming.He is appearing at Exmouth.He has met her several times and they even have his mobile number.He adores her.He took her to the zoo once as he does that kind of thing for hospices with terminal kids.He loved every minute.
25-08-2009 01:48 PM - permalink
Kayleigh

Hi Charmain, how is Alycia today..she looks so well on the video she is lovely.
24-08-2009 01:08 PM - permalink
Kayleigh

That is fantastic news Charmain she is a real fighter she is hanging in there.
24-08-2009 11:50 AM - permalink
Kayleigh

I have sent you a pm..It would be nice to put the video onto your profile..
That's a lovely profile pic of you both..

Elaine x
24-08-2009 11:38 AM - permalink
cherrybee

Thank you . I have a lovely video I took of her on facebook watching and singing and acting Mary Poppins on video.It makes it all the harder seeing it to believe how ill she is as she smiles so much.I took it at exeter hospital before she went to Great Ormond Street. Cant find a way of putting a link to it. The only thing I can do is to share to someones email addy or I would show you it.
24-08-2009 11:27 AM - permalink
Kayleigh

Oh Charmain,
I am so sorry for you, I can not begin to understand the pain you are suffering this is really sad news she is such a lively fun loving little thing.
My heart goes out to at this time and try to be strong..
My thoughts are with you, Alycia and the family..
take care Charmain.

Elaine x
24-08-2009 11:07 AM - permalink
cherrybee

Dont want to post this .My grandaughter has been very ill and went into heart failure.Her kidneys are failing and the day we have been dreading is near.She is coming out of Great Ormond Street with meds that will keep her comfortable.We dont know how long we will have with her.My heart is breaking. The family in bits but we have to keep a face on for the kids sake as they dont know yet. So hard.A lot of friends on here but I cannot write this to everyone. Just needed to share. Sorry
17-04-2009 08:40 PM - permalink
Kayleigh

Hi Charmain, looking forward to chatting soon..
Take care
Elaine

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